Internet searching

Needless to say, when we first discovered our son had had IVH and PVL we did a lot of researching on the internet. Although the getting the information was necessary for me, it was also hard at times as often you find only the worse case scenerios. It actually came to a point when Barrett was still in the NICU that I had to just stop researching and focus 100% of my attention on him. One Dr. gave me the best words of advice, "focus on what you are seeing today". I go through phases now, where I will spend a few days looking up information on the internet and then I leave it for awhile. The internet is often the ony reminder that Barrett may have some developmental delays. It is just hard to picture at this point as we are seeing no obvious signs.

As Barrett is developing more I am finding the need to get ideas on what I can be doing (outside of his regular OT visits). Through googling a lot of blogs I have been able to find stories of preemies with PVL that have outcomes that are well, not so bad. Better yet, I have also found some online groups specifically set up for these issues. It is amazing the support you feel just knowing there are others in the same situation. My most recent discovery was the benefit of doing infant yoga. So I am now awaiting the arrival of my new Baby & Toddler Yoga DVD!